Hi everyone, I wanted to start a blog to share updates with family and friends on what is going on with my health and I also made this blog to help others going through similar issues. Today I wanted to share my story with everyone.
When I was 9 or 10 years old I started to get severe abdominal pain, for the longest time all the doctors thought it was IBS (irritable bowel syndrome) or they just thought it was all in my head. I went through so many different doctors and none of them could find out what was wrong with me. They did pretty much every test you could think of, colonoscopy, endoscopy, CT scans, X-rays, blood work, ultra sounds, HIDA scan,MRI, I could probably go on. Everything came back "normal."
When I was 12 years old I started my periods and this was when things got worse. We knew something wasn't right because of how painful my periods were and how bad my pain was getting. We went through more doctors and all they said to do was go on Birth control pills to help regulate my periods and I should be fine. Well after like 6 different pills and all failed at 13 I went to a pediatric Gynecologist to see if they could help. All they said to do was take birth control as well they didn't seem to think anything could be wrong with me so they gave me yet another pill and away we went. I came back 2 months later in worse pain. I told them something just isn't right and I think something is wrong. They finally listened and sent me to a surgeon because they thought I possibly could have endometriosis. They were right, on December 19th, 2013 I had my first surgery at age 14 and they found endometriosis it was a bittersweet moment. I was glad to know what was wrong but I also didn't know much about this disease at the time. That surgeon said I wouldn't need another surgery for 5 years. She was wrong, little did I know the long hard journey ahead of me.
Just 9 months later I had another surgery with an excision specialist to remove a lot of endometriosis and adhesions. After that surgery in September of 2014 things got even worse. I had to start home schooling because the pain was so bad I couldn't make it to school. The pain was just unbearable I went through 2 more surgeries in March of 2015 I had the back to back surgery to help stop the cycle of adhesions. In that surgery they had to remove my appendix, adhesions and some endometriosis. In the second surgery just one week later they did find even more adhesions. After that surgery I continued to suffer. I went through pelvic floor therapy for months, I also got a second opinion with another doctor in CA to see if he could help and he really had no suggestions for me. I ended up having another surgery in October 2015 and my surgeon removed a lot of adhesions luckily I did't have any endometriosis. Unfortunately my pain got extremely bad after that surgery and just 3 months later I had another one. My last surgery was January 6th, 2016 and in this surgery my adhesions were the worst they have ever been. My doctor placed amionic tissue to help prevent adhesions but so far my pain is the same. My doctor also found rare stromal cells in my surgery in January and we have no idea if that could be adding to my pain or not. So right now I am getting a CT and MRI on Tuesday to see if there is anything serious going on. Once we get the results we will go from there on what we want to do. I may have more surgery with my surgeon local or I may be able to get treated by an adhesion specialist in PA we are just waiting to get into him right now.
Thank you for reading! Sorry it was so long.....This was even the short version of my story!!
