Hi everyone, I wanted to share with you guys that I made a YouTube channel over the weekend! Go check it out I will have a link at the end of this post. I wanted to make this channel to help support others going though similar issues and for raising awareness. I am also doing fun videos on my channel like Ipsy bag unboxing's and stuff like that. I will also be doing some Vlogs when I go to doctors appointments and things like that. So if you would like you should go check it out! :)
https://www.youtube.com/channel/UCSe4cTdoTU24XgTNL1bBaZw
Monday, March 14, 2016
Thursday, March 10, 2016
Going to a new doctor
Hi everyone, I just wanted to update you guys about whats been going on with me since my surgery.
I don't want to go into much detail about my symptoms but I'm having severe bowel issues since my surgery. So now we are going to a new GI doctor to see what they think is going on. I have an appointment for March 26th which isn't far away at all which is great. I am really hoping this doctor doesn't dismiss my pain as being in my head and takes this seriously and helps me. Last week I also found something out that made me furious, I went to the new NP at my general doctors office for a refill on something and she said she saw something odd. In my last colonoscopy in January of 2015 she said it looked like I had a lot of inflammation up to my sigmoid colon and she found it odd he didn't do anything about it. He did tell my parents about it but he said it was from the scope which is a bunch of crap! So I am REALLY hoping this new GI doctor can help me, its super hard to go out to places and function with these bowel issues I am having and all I want to do is do normal teenage stuff so hopefully we get this under control.
I don't want to go into much detail about my symptoms but I'm having severe bowel issues since my surgery. So now we are going to a new GI doctor to see what they think is going on. I have an appointment for March 26th which isn't far away at all which is great. I am really hoping this doctor doesn't dismiss my pain as being in my head and takes this seriously and helps me. Last week I also found something out that made me furious, I went to the new NP at my general doctors office for a refill on something and she said she saw something odd. In my last colonoscopy in January of 2015 she said it looked like I had a lot of inflammation up to my sigmoid colon and she found it odd he didn't do anything about it. He did tell my parents about it but he said it was from the scope which is a bunch of crap! So I am REALLY hoping this new GI doctor can help me, its super hard to go out to places and function with these bowel issues I am having and all I want to do is do normal teenage stuff so hopefully we get this under control.
Sunday, February 28, 2016
Update: Surgery, infection, anti-biotic reaction ugh!
Hi everyone, sorry I haven't been posting lately things have been crazy with my health the past few weeks so here is what is going on.
I had the part 2 to my surgery last Friday and the surgery itself went well they found more adhesions cleaned that up and placed more barriers. However the recovery from that surgery was/has been pure hell! I was in the hospital 3 days, 2 nights. I was only suppose to be there 1 day. I was there longer than expected because my pain was severe and they couldn't get it under control. The second night I was screaming and crying practically all night because I felt like things were moving in me. My right ovary was hurting the worst it had ever hurt. Finally they got my pain somewhat under control good enough I was able to go home. This past week on Monday or Tuesday I noticed my belly button looking all red and lots of abnormal stuff was coming out of it. So on Friday I went to my doctors office and saw the nurse practitioner and she said I needed to start anti-biotic's. I started the medication on Friday afternoon and Friday night I started to experience all over body aches and swelling. We didn't know what could be causing that we thought maybe it was just a fluke and I would wake up the next day better. Well I woke up Saturday morning in even worse pain body ache wise. It hurts to walk, lift my arms to get dressed, sit for more than 5 minutes I could go on. I stopped the medication last night Saturday night and ever since I have been feeling the same if not worse. I have only been off it a day but still it's terrible being in so much pain. We are trying some stuff at home to hopefully help those side-effects and we are contacting the doctor tomorrow for a new anti-biotic and to see what they recommend to do for the reaction.
Adhesion pain wise since the surgery I have been doing okay. My right ovary hurts a ton and I am still having bowel issues but I am also still healing it has only been about a week so hopefully things will improve with time. And hopefully once this anti-biotic gets out of my system things will be much much better!
Thank you so much for reading! :)
I had the part 2 to my surgery last Friday and the surgery itself went well they found more adhesions cleaned that up and placed more barriers. However the recovery from that surgery was/has been pure hell! I was in the hospital 3 days, 2 nights. I was only suppose to be there 1 day. I was there longer than expected because my pain was severe and they couldn't get it under control. The second night I was screaming and crying practically all night because I felt like things were moving in me. My right ovary was hurting the worst it had ever hurt. Finally they got my pain somewhat under control good enough I was able to go home. This past week on Monday or Tuesday I noticed my belly button looking all red and lots of abnormal stuff was coming out of it. So on Friday I went to my doctors office and saw the nurse practitioner and she said I needed to start anti-biotic's. I started the medication on Friday afternoon and Friday night I started to experience all over body aches and swelling. We didn't know what could be causing that we thought maybe it was just a fluke and I would wake up the next day better. Well I woke up Saturday morning in even worse pain body ache wise. It hurts to walk, lift my arms to get dressed, sit for more than 5 minutes I could go on. I stopped the medication last night Saturday night and ever since I have been feeling the same if not worse. I have only been off it a day but still it's terrible being in so much pain. We are trying some stuff at home to hopefully help those side-effects and we are contacting the doctor tomorrow for a new anti-biotic and to see what they recommend to do for the reaction.
Adhesion pain wise since the surgery I have been doing okay. My right ovary hurts a ton and I am still having bowel issues but I am also still healing it has only been about a week so hopefully things will improve with time. And hopefully once this anti-biotic gets out of my system things will be much much better!
Thank you so much for reading! :)
Tuesday, February 16, 2016
Surgery Update
Hi everyone, I just wanted to give an update on how my surgery went on Friday.
The surgery went well for the most part he was in there for a while again cutting down lots of adhesions. My left ovary all the way up to my spleen was covered in adhesions and that was a lot more than what was there 5 weeks ago which isn't good. He placed the barriers on my left ovary and left abdominal wall because those were the worst spots. I also had some adhesions on my colon and right side. This week I will be going in for another surgery on Friday for a second look to clean any additional adhesions up and place more barriers to hopefully give me a better outcome.
I have been feeling okay ever since the surgery, I am not doing great but I am not doing terrible. I am having a lot of post-op pain which is very normal for what my surgeon did on me. This next surgery will probably even increase my pain more for the next week or so because there opening me up once again but it should help in the long run.
I just wanted to let you all know how it went, please keep me in your prayers that this next surgery will be the one that works! We are all hoping and praying this will be the end to all of this.
The surgery went well for the most part he was in there for a while again cutting down lots of adhesions. My left ovary all the way up to my spleen was covered in adhesions and that was a lot more than what was there 5 weeks ago which isn't good. He placed the barriers on my left ovary and left abdominal wall because those were the worst spots. I also had some adhesions on my colon and right side. This week I will be going in for another surgery on Friday for a second look to clean any additional adhesions up and place more barriers to hopefully give me a better outcome.
I have been feeling okay ever since the surgery, I am not doing great but I am not doing terrible. I am having a lot of post-op pain which is very normal for what my surgeon did on me. This next surgery will probably even increase my pain more for the next week or so because there opening me up once again but it should help in the long run.
I just wanted to let you all know how it went, please keep me in your prayers that this next surgery will be the one that works! We are all hoping and praying this will be the end to all of this.
Friday, February 5, 2016
2 more surgeries?
Hi everyone I wanted to update you all on how my scans went and what the next step in my treatment is.
The scans went well, the did end up finding something but nothing serious. My bowels were swollen/inflamed and there was some fluid in my pelvis which we were told the fluid in my pelvis could be normal due to me just having surgery about a month ago. My doctor personally called my mom and talked about treatment options. After thinking hard about what to so next we decided to do another set of back to back surgeries and they will be next Friday the 12th and the following Friday the 19th. If you don't know what this surgery is it is where they go in 1 week and remove adhesions place some barriers and then seven days later they go in again and remove any additional adhesions and place more barriers. The concept is this will stop the cycle of adhesion and the adhesions won't come back as bad or at all. I have done this surgery before back in March but did not have any barriers placed. We are hoping and praying for the best outcome, this wasn't an easy decision to make what so ever but since we have looked into all other options this was the best thing to do in my situation right now. This will be my 7th and 8th surgery I am so hoping I can get back to living my life after this. I know these next few weeks are not going to be easy what so ever but I am going to keep positive and keep pushing through it all and make the best of the situation.
Thank you for all of your sweet messages and comments on my last blog it was really encouraging to read. I will keep you all posted on how these surgeries go. I update my health regularly on my Instagram for my health so if you would like you can go follow me on there emilys_endolife. I will also try and write on here after both surgeries to keep everyone updated on how I am doing and how everything went :)
The scans went well, the did end up finding something but nothing serious. My bowels were swollen/inflamed and there was some fluid in my pelvis which we were told the fluid in my pelvis could be normal due to me just having surgery about a month ago. My doctor personally called my mom and talked about treatment options. After thinking hard about what to so next we decided to do another set of back to back surgeries and they will be next Friday the 12th and the following Friday the 19th. If you don't know what this surgery is it is where they go in 1 week and remove adhesions place some barriers and then seven days later they go in again and remove any additional adhesions and place more barriers. The concept is this will stop the cycle of adhesion and the adhesions won't come back as bad or at all. I have done this surgery before back in March but did not have any barriers placed. We are hoping and praying for the best outcome, this wasn't an easy decision to make what so ever but since we have looked into all other options this was the best thing to do in my situation right now. This will be my 7th and 8th surgery I am so hoping I can get back to living my life after this. I know these next few weeks are not going to be easy what so ever but I am going to keep positive and keep pushing through it all and make the best of the situation.
Thank you for all of your sweet messages and comments on my last blog it was really encouraging to read. I will keep you all posted on how these surgeries go. I update my health regularly on my Instagram for my health so if you would like you can go follow me on there emilys_endolife. I will also try and write on here after both surgeries to keep everyone updated on how I am doing and how everything went :)
Sunday, January 31, 2016
My Story
Hi everyone, I wanted to start a blog to share updates with family and friends on what is going on with my health and I also made this blog to help others going through similar issues. Today I wanted to share my story with everyone.
When I was 9 or 10 years old I started to get severe abdominal pain, for the longest time all the doctors thought it was IBS (irritable bowel syndrome) or they just thought it was all in my head. I went through so many different doctors and none of them could find out what was wrong with me. They did pretty much every test you could think of, colonoscopy, endoscopy, CT scans, X-rays, blood work, ultra sounds, HIDA scan,MRI, I could probably go on. Everything came back "normal."
When I was 12 years old I started my periods and this was when things got worse. We knew something wasn't right because of how painful my periods were and how bad my pain was getting. We went through more doctors and all they said to do was go on Birth control pills to help regulate my periods and I should be fine. Well after like 6 different pills and all failed at 13 I went to a pediatric Gynecologist to see if they could help. All they said to do was take birth control as well they didn't seem to think anything could be wrong with me so they gave me yet another pill and away we went. I came back 2 months later in worse pain. I told them something just isn't right and I think something is wrong. They finally listened and sent me to a surgeon because they thought I possibly could have endometriosis. They were right, on December 19th, 2013 I had my first surgery at age 14 and they found endometriosis it was a bittersweet moment. I was glad to know what was wrong but I also didn't know much about this disease at the time. That surgeon said I wouldn't need another surgery for 5 years. She was wrong, little did I know the long hard journey ahead of me.
Just 9 months later I had another surgery with an excision specialist to remove a lot of endometriosis and adhesions. After that surgery in September of 2014 things got even worse. I had to start home schooling because the pain was so bad I couldn't make it to school. The pain was just unbearable I went through 2 more surgeries in March of 2015 I had the back to back surgery to help stop the cycle of adhesions. In that surgery they had to remove my appendix, adhesions and some endometriosis. In the second surgery just one week later they did find even more adhesions. After that surgery I continued to suffer. I went through pelvic floor therapy for months, I also got a second opinion with another doctor in CA to see if he could help and he really had no suggestions for me. I ended up having another surgery in October 2015 and my surgeon removed a lot of adhesions luckily I did't have any endometriosis. Unfortunately my pain got extremely bad after that surgery and just 3 months later I had another one. My last surgery was January 6th, 2016 and in this surgery my adhesions were the worst they have ever been. My doctor placed amionic tissue to help prevent adhesions but so far my pain is the same. My doctor also found rare stromal cells in my surgery in January and we have no idea if that could be adding to my pain or not. So right now I am getting a CT and MRI on Tuesday to see if there is anything serious going on. Once we get the results we will go from there on what we want to do. I may have more surgery with my surgeon local or I may be able to get treated by an adhesion specialist in PA we are just waiting to get into him right now.
Thank you for reading! Sorry it was so long.....This was even the short version of my story!!
When I was 9 or 10 years old I started to get severe abdominal pain, for the longest time all the doctors thought it was IBS (irritable bowel syndrome) or they just thought it was all in my head. I went through so many different doctors and none of them could find out what was wrong with me. They did pretty much every test you could think of, colonoscopy, endoscopy, CT scans, X-rays, blood work, ultra sounds, HIDA scan,MRI, I could probably go on. Everything came back "normal."
When I was 12 years old I started my periods and this was when things got worse. We knew something wasn't right because of how painful my periods were and how bad my pain was getting. We went through more doctors and all they said to do was go on Birth control pills to help regulate my periods and I should be fine. Well after like 6 different pills and all failed at 13 I went to a pediatric Gynecologist to see if they could help. All they said to do was take birth control as well they didn't seem to think anything could be wrong with me so they gave me yet another pill and away we went. I came back 2 months later in worse pain. I told them something just isn't right and I think something is wrong. They finally listened and sent me to a surgeon because they thought I possibly could have endometriosis. They were right, on December 19th, 2013 I had my first surgery at age 14 and they found endometriosis it was a bittersweet moment. I was glad to know what was wrong but I also didn't know much about this disease at the time. That surgeon said I wouldn't need another surgery for 5 years. She was wrong, little did I know the long hard journey ahead of me.
Just 9 months later I had another surgery with an excision specialist to remove a lot of endometriosis and adhesions. After that surgery in September of 2014 things got even worse. I had to start home schooling because the pain was so bad I couldn't make it to school. The pain was just unbearable I went through 2 more surgeries in March of 2015 I had the back to back surgery to help stop the cycle of adhesions. In that surgery they had to remove my appendix, adhesions and some endometriosis. In the second surgery just one week later they did find even more adhesions. After that surgery I continued to suffer. I went through pelvic floor therapy for months, I also got a second opinion with another doctor in CA to see if he could help and he really had no suggestions for me. I ended up having another surgery in October 2015 and my surgeon removed a lot of adhesions luckily I did't have any endometriosis. Unfortunately my pain got extremely bad after that surgery and just 3 months later I had another one. My last surgery was January 6th, 2016 and in this surgery my adhesions were the worst they have ever been. My doctor placed amionic tissue to help prevent adhesions but so far my pain is the same. My doctor also found rare stromal cells in my surgery in January and we have no idea if that could be adding to my pain or not. So right now I am getting a CT and MRI on Tuesday to see if there is anything serious going on. Once we get the results we will go from there on what we want to do. I may have more surgery with my surgeon local or I may be able to get treated by an adhesion specialist in PA we are just waiting to get into him right now.
Thank you for reading! Sorry it was so long.....This was even the short version of my story!!
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